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Patient Priorities Of Care In Rheumatology Outpatient Clinics: A Qualitative Study.

Vicky Ward, J. Hill, C. Hale, H. Bird, H. Quinn, R. Thorpe
Published 2007 · Medicine

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OBJECTIVE To provide more understanding of what rheumatoid arthritis (RA) patients want and need from an outpatient visit. METHODS 25 patients who experienced care in a nurse practitioner clinic (n = 10), junior doctor clinic (n = 9) or consultant clinic (n = 6) in a large teaching hospital in West Yorkshire were interviewed about their perceptions and experiences of care. Interviews were approximately 1 1/2 hours in duration and were carried out in a neutral environment by a research nurse. Interview data were subjected to atheoretical content analysis, which resulted in the identification of emergent themes. RESULTS Five main themes emerged from the analysis of interview data: 1) patients want to be communicated to clearly and effectively and value positive relationships with practitioners. These help to give patients confidence in the care they are receiving; 2) patients want to feel in control of their condition and tend to refuse interventions as a way of gaining control; 3) patients want to be given clear explanations during consultations, and want information in oral and written forms; 4) patients want to be able to access practitioners between scheduled appointments as a way of gaining reassurance; and 5) patients want to feel valued by society through having their difficulties appreciated and understood by others. CONCLUSION This research adds to the body of evidence on what patients want from their rheumatology care, and each theme has clear implications for future practice.
This paper references
Multidisciplinary patient care in rheumatoid arthritis: evolving concepts in nursing practice.
A. Madigan (1999)
Perceived stressors and coping strategies among individuals with rheumatoid arthritis.
G. Mahat (1997)
Doctor-patient communication and the quality of care.
J. Bensing (1991)
How "bad" does the pain have to be? A qualitative study examining adherence to pain medication in older adults with osteoarthritis.
J. E. Sale (2006)
Supporting people with long-term conditions.
B. Porter (2005)
The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. The Committee on Outcome Measures in Rheumatoid Arthritis Clinical Trials.
D. Felson (1993)
Questioning patient satisfaction: An empirical investigation in two outpatient clinics
M. Avis (1997)
Osteoarthritis: an overview of the disease and its treatment strategies.
P. Sarzi-Puttini (2005)
Psychiatric disorder and illness behaviour in rheumatoid arthritis.
S. Murphy (1988)
Patient non-compliance: deviance or reasoned decision-making?
J. Donovan (1992)
NVivo, Version 6
QSR International (2002)
A daily process design study of attentional pain control strategies in the self‐management of cancer pain
R. Buck (2006)
Corporeality: women's experiences of a body with rheumatoid arthritis.
S. Plach (2004)
Patient satisfaction in a nurse-led rheumatology clinic.
J. Hill (1997)
Patient adherence to treatment: three decades of research. A comprehensive review.
E. Vermeire (2001)
Rheumatology nursing : a creative approach
J. Hill (1998)
Training practitioners to communicate effectively in cancer care: it is the relationship that counts.
H. Beckman (2003)
Rheumatology: A Handbook for Community Nurses
J. Hill (2000)
Doctor-patient communication: a review of the literature.
L. M. Ong (1995)
Rheumatology: the expectations and preferences of patients for their follow-up monitoring care: a qualitative study to determine the dimensions of patient satisfaction.
V. Arthur (2004)
Pain management in a rheumatology department: a satisfaction survey.
Anne Bera Louville (2003)
Rheumatoid arthritis: An information booklet
Arthritis Research Campaign (2003)
Nurse practitioner and physician communication styles.
M. Lawson (2002)
The patient’s priorities: goal-setting for patients with RA in the rheumatology outpatient clinic
ME Carr (2001)
Continuity of care and caring: what matters to parents of children with life-threatening conditions.
K. Heller (2005)
Competency in shaping one's life: autonomy of people with type 2 diabetes mellitus in a nurse-led, shared-care setting; a qualitative study.
A. Moser (2006)
Evidence-based management of osteoarthritis: practical issues relating to the data.
M. Doherty (2001)
Evaluation of educational preparation for cancer and palliative care nursing for children and adolescents in England.
T. Long (2008)
Rheumatology outcomes: the patient's perspective.
A. Carr (2003)
Patient ratings of care at a rheumatology out-patient unit.
P. Clark (2004)

This paper is referenced by
Different patient subgroup, different ranking? Which quality indicators do patients find important when choosing a hospital for hip- or knee arthroplasty?
Nicolien C. Zwijnenberg (2011)
What do we know about rheumatoid arthritis patients' support needs for self-management? A scoping review.
R. Zuidema (2015)
Qualitative Methods to Advance Care, Diagnosis, and Therapy in Rheumatic Diseases.
L. Saketkoo (2018)
Patient education and self-management
Alison Hammond (2010)
Patients' perceived health information needs in inflammatory arthritis: A systematic review.
Kathryn L Connelly (2019)
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J Tunnicliffe (2017)
An investigation of factors that impact patients’ subjective experience of nurse-led clinics: a qualitative systematic review
BNurs Bchc PhD Candidate Samantha Jakimowicz Rn (2014)
Patients' and healthcare providers' experiences of the cause, management and interaction in the care of rheumatoid arthritis
Ulrika Bergsten (2011)
Patient Expectations and Perceptions of Goal-setting Strategies for Disease Management in Rheumatoid Arthritis
V. Strand (2015)
Being an outpatient with rheumatoid arthritis--a focus group study on patients' self-efficacy and experiences from participation in a short course and one of three different outpatient settings.
J. Primdahl (2011)
Management in Rheumatoid Arthritis Patient Expectations and Perceptions of Goal-setting Strategies for Disease
V. Strand (2015)
Participatory development and evaluation of an online self-management enhancing program for patients with Rheumatoid Arthritis
Rixt M Zuidema (2019)
“Delivering knowledge and advice”: Healthcare providers’ experiences of their interaction with patients’ management of rheumatoid arthritis
U. Bergsten (2011)
Attitudes towards Oral Health in Patients with Rheumatoid Arthritis: A Qualitative Study Nested within a Randomized Controlled Trial
S. Serban (2019)
EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis
Y. van Eijk-Hustings (2012)
Patients’ needs and expectations with regard to rheumatology nursing care: results of multicentre focus group interviews
Y. van Eijk-Hustings (2013)
Redefined by illness: meta-ethnography of qualitative studies on the experience of rheumatoid arthritis
Gavin Daker-White (2014)
Parallel paths? Patient and doctor priorities in psychiatric outpatient consultations
Samuel J. Thomson (2010)
The need for musculoskeletal education in primary care residencies.
Danielle L. Scher (2014)
Improving clinical outcomes in rheumatoid arthritis : a patient centred approach
Louise C. Pollard (2013)
Experiences of Patients With Rheumatoid Arthritis: A Qualitative Study
L. W. Poh (2017)
Exploring indicators for pain rehabilitation: a Delphi study using a multidisciplinary expert panel.
Asa Skjutar (2009)
Indicators of need for occupational therapy in patients with chronic pain: occupational therapists' focus groups.
Asa Skjutar (2010)
An investigation of factors that impact patients' subjective experience of nurse-led clinics: a qualitative systematic review.
Samantha Jakimowicz (2015)
An integrative review of experiences of patients with rheumatoid arthritis.
Li Wen Poh (2015)
Patient-perceived health service needs in inflammatory arthritis: A systematic scoping review.
J. Segan (2018)
“Striving for a Good Life” – The Management of Rheumatoid Arthritis as Experienced by Patients
U. Bergsten (2011)
Patient goals in rheumatoid arthritis care: A systematic review and qualitative synthesis
Elizabeth Hulen (2017)
A multi-centre study of interactional style in nurse specialist- and physician-led Rheumatology clinics in the UK.
K. Vinall-Collier (2016)
EULAR recommendations for patient education for people with inflammatory arthritis
H. Zangi (2015)
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