Online citations, reference lists, and bibliographies.
← Back to Search

The Impact Of Incontinence On Older Spousal Caregivers.

C. Cassells, E. Watt
Published 2003 · Psychology, Medicine

Save to my Library
Download PDF
Analyze on Scholarcy
Share
BACKGROUND The role of informal spousal caregivers has increased as the population ages, levels of disability in society increase, and governments seek to restrain expenditure on the provision of institutional health care. Care giving has attracted a vast body of research, largely directed at caregiver burden. Incontinence, however, has been relatively unexplored, despite being a common problem faced by caregivers, and being recognised as a major caregiver burden and predictor of institutional placement. AIMS This study began to explore the impact of care recipient incontinence on major care providers, that is, their spouses. APPROACH A qualitative approach based on the grounded theory method was used. Eight home-based caregivers of spouses with incontinence were interviewed. FINDINGS Data analysis revealed a number of categories, grouped under three major themes: underpinnings, processes and consequences. The underpinnings were lifelong love and friendship, and acceptance; the processes were problem-solving and constant watchfulness. The consequences were role change, financial cost, decreased intimacy, emotional responses, sleeping issues and social isolation. DISCUSSION The research highlighted the interconnectedness of factors in the experiences of carers, reinforcing the need for holistic assessment beyond a focus on the "continence issue" alone. Nevertheless, simple interventions could make substantial differences. A framework is proposed which may guide nursing assessment.
This paper references
10.1046/J.1365-2702.2000.00346.X
Prevalence of urinary incontinence and its relationship with health status.
B. Roe (2000)
10.1093/GERONJ/45.5.P181
Psychiatric and physical morbidity effects of caregiving.
R. Schulz (1990)
10.1111/j.1532-5415.1990.tb03543.x
Incontinence Among Elderly Community‐Dwelling Dementia Patients
J. Ouslander (1990)
10.1159/000046727
Macronutrient, Vitamin, and Mineral Intakes in the EPIC-Germany Cohorts
M. Schulze (2001)
Psychological Impact of Caregiving on the Careprovider: A Critical Review of Extant Research
V. Raveis (1988)
10.1111/j.1532-5415.1999.tb03841.x
Prevalence of Combined Fecal and Urinary Incontinence: A Community‐Based Study
R. Roberts (1999)
10.1093/GERONT/37.5.666
Health and well-being of spouse caregivers and the widowed.
Y. Wells (1997)
Basics of qualitative research : techniques and procedures for developing grounded theory
A. Strauss (1998)
10.1002/J.2048-7940.2002.TB01976.X
Caregivers' and Care Recipients' Perceptions of Dealing with Urinary Incontinence
Martha S Gallagher (2002)
10.7748/NS2000.01.14.16.33.C2737
Factors affecting the decision to place a relative with dementia into residential care.
M. Armstrong (2000)
10.1093/GERONT/26.3.260
Subjective burden of husbands and wives as caregivers: a longitudinal study.
S. Zarit (1986)
10.1300/J083V26N03_02
Anxiety about aging: A neglected dimension of caregivers’ experiences
Karla Scroggin Wullschleger (1997)
10.3928/0098-9134-20010701-11
Family caregiver intervention research: where have we been? Where are we going?
C. Farran (2001)
10.1093/GERONT/32.4.541
Impact on caregivers of supporting urinary function in noninstitutionalized, chronically ill seniors.
J. H. Flaherty (1992)
10.1001/JAMA.282.23.2215
Caregiving as a risk factor for mortality: the Caregiver Health Effects Study.
R. Schulz (1999)
10.1093/GERONT/27.2.194
Incontinence in elderly cared for by family.
L. Noelker (1987)
Understanding family care : a multidimensional model of caring and coping
M. Nolan (1996)
10.4324/9780203793206-1
The Discovery of Grounded Theory
A. L. Strauss (1967)
10.1111/j.1467-842X.1997.tb01655.x
A profile of Australian family caregivers: diversity of roles and circumstances
H. Schofield (1997)



This paper is referenced by
Incontinence in the Frail Elderly
D. Fonda (2005)
10.1002/14651858.CD010589
Toileting assistance programmes for the management of urinary incontinence in adults
J. Ostaszkiewicz (2013)
10.1002/nau.21040
Association between urinary incontinence in elderly patients and caregiver burden in the city of Sao Paulo/Brazil: Health, Wellbeing, and Ageing Study
J. T. Tamanini (2011)
10.1016/J.CGER.2005.12.014
Neurogenic bowel and bladder in the older adult.
M. Stern (2006)
10.12968/bjon.2015.24.14.726
Empowering patients to self-manage in the context of incontinence.
A. Kelly (2015)
Being an older husband caregiver in South Korea
W. J. Cho (2012)
10.1007/s00391-008-0560-9
Urinary incontinence – The family caregivers’ perspective
D. Hayder (2008)
Management of urinary incontinence.
George Demaagd (2012)
Incontinence and dementia: providing innovative family care
Norah Bostock (2006)
Using Telehealth to Support Informal Caregivers of Elders with Urinary Incontinence: A Pilot/Feasibility Study
Nicole Davis (2015)
10.1186/s12877-019-1254-4
The impact of the absorbent products distribution system on family caregivers of older people with incontinence in Italy: perception of the support received
S. Santini (2019)
10.1002/9781118785607.CH7
Why Is My Mother Wearing a Diaper
Rn Annemarie Dowling-Castronovo (2013)
10.1007/s40266-015-0281-x
Managing Urinary Incontinence in Patients with Dementia: Pharmacological Treatment Options and Considerations
S. Orme (2015)
10.1007/978-3-319-97265-7_16
Considerations in the Medically Complex and Frail Elderly
A. Wagg (2019)
10.1108/14769018200900004
Promoting Continence and Managing Incontinence with People with Dementia Living at Home: One More Challenge for Integration
V. Drennan (2009)
10.1016/J.SOCSCIMED.2007.04.002
The social consequences of living with and dealing with incontinence--a carers perspective.
K. Brittain (2007)
10.1089/JPM.2006.9989
Palliative care for the older adult.
Jennifer Kapo (2007)
Démarches d'amélioration de la qualité des soins liés à l'incontinence urinaire
A. Kassouha (2013)
10.1136/EOLJNL-02-02.6
Living With People Who Have Dementia and Faecal Incontinence
Nykki Hetherton (2012)
10.1097/00152192-200601000-00011
The Psychometric Testing of a Urinary Incontinence Nursing Assessment Instrument
L. Jansen (2006)
10.5353/TH_B4833553
Evidence-based intervention protocol of using biofeedback therapy for minimizing post surgery bowel incontinence for adult patients
林卓凡 (2012)
10.3310/PGFAR03030
Changing practice in dementia care in the community : developing and testing evidence-based interventions, from timely diagnosis to end of life (EVIDEM)
S. Iliffe (2015)
10.1186/1471-2318-11-75
A taboo within a stigma? a qualitative study of managing incontinence with people with dementia living at home
V. Drennan (2011)
10.1111/opn.12182
A conceptual model of the risk of elder abuse posed by incontinence and care dependence
J. Ostaszkiewicz (2018)
10.4415/ANN_19_01_06
Impact of the lack of integrated care for older people with urinary incontinence and their family caregivers: results from a qualitative pilot study in two large areas of the Marche Region.
Alessia Carsughi (2019)
10.1192/APT.12.3.162
Meeting the mental and physical healthcare needs of carers
I. Cormac (2006)
10.1111/j.1748-3743.2008.00159.x
Promoting urinary continence with older people: key issues for nurses.
J. Booth (2009)
URINARY AND FAECAL INCONTINENCE AMONG OLDER WOMEN AND MEN
Karin Stenzelius (2005)
10.1111/j.1471-6712.2008.00672.x
Functional levels and nurse workload of elderly awaiting nursing home placement and nursing home residents: a comparative study.
A. Fjelltun (2009)
10.7748/NOP2011.07.23.6.14.C8585
Older people in care homes: sexuality and intimate relationships.
H. Heath (2011)
10.1007/978-3-319-90704-8_1
Fecal incontinence: Definition and impact on quality of life
Cynthia J. Peden-McAlpine (2018)
10.2217/17455057.4.5.517
Fecal incontinence in women: causes and treatment.
A. Makol (2008)
See more
Semantic Scholar Logo Some data provided by SemanticScholar