Online citations, reference lists, and bibliographies.
← Back to Search

The Assessment And Management Of Family Distress During Palliative Care

T. Zaider, D. Kissane
Published 2009 · Medicine

Save to my Library
Download PDF
Analyze on Scholarcy
Purpose of reviewIn the advanced stages of illness, families manage multiple caregiving demands while facing the emotional task of preparing for the loss of their loved one. Palliative care settings are well suited to identifying families at risk for elevated distress, and providing support as they navigate this process. This review summarizes current research in the assessment and management of family distress at the end of life. Recent findingsThe recent literature on families of terminally ill cancer patients has provided a more precise description of the relational and cultural factors that contribute to family distress. Studies eliciting the perspectives of family members on what is needed at the end of life affirm the importance of supportive communication and continuity of psychosocial care into bereavement. Other developments include efforts to establish guidelines for conducting family meetings in the palliative care setting, and to train palliative care practitioners in family-centered assessment techniques. Finally, there is a limited but growing evidence base for the utility of delivering family-focused psychosocial interventions during palliative care. SummaryThe knowledge gained from current research on what is most salient to family members during palliative care is critical for ensuring effective delivery of supportive services and collaborative engagement in those services.
This paper references
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement.
D. Kissane (2006)
The Psychosocial Assessment Tool (PAT2.0): psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer.
Ahna L. H. Pai (2008)
Conducting family meetings in palliative care: themes, techniques, and preliminary evaluation of a communication skills module.
J. Gueguen (2009)
Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase.
E. Grov (2005)
What questions do family caregivers want to discuss with health care providers in order to prepare for the death of a loved one? An ethnographic study of caregivers of patients at end of life.
R. Hebert (2008)
Family members' perceived needs for bereavement follow-up.
A. Milberg (2008)
Family caregiver quality of life: differences between curative and palliative cancer treatment settings.
M. Weitzner (1999)
Family focused grief therapy : a model of family-centred care during palliative care and bereavement
D. Kissane (2002)
Psychiatric morbidity and quality of life in wives of men with long‐term head and neck cancer
N. Drabe (2008)
Psychological morbidity in the families of patients with cancer
D. Kissane (1994)
Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care
P. Hudson (2008)
Essential information and support needs of family caregivers.
S. Wackerbarth (2002)
Family Environment Scale Manual
R H Moos (1981)
NIH State - ofthe - Science Conference Statement on improving end - of - life care
JS Rolland (2004)
The psychological impact of cancer on patients' partners and other key relatives: a review.
C. Pitceathly (2003)
Cancer and the family: An integrative model
J. Rolland (2005)
Cancer families with children: factors associated with family functioning—a comparative study in Finland
F. Schmitt (2008)
Resilient families
T Zaider
Couples therapy at end of life
D. Mohr (2003)
Family support at end of life.
K. Kirchhoff (2007)
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.
A. Wright (2008)
Health-related quality of life in significant others of patients dying from lung cancer
C. Persson (2008)
The psychological impact of a cancer diagnosis on families: The influence of family functioning and patients' illness characteristics on depression and anxiety
B. Edwards (2004)
Understanding the meaning of social well-being at the end of life.
M. Prince-Paul (2008)
Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research.
R. Hebert (2006)
Palliative care for cancer patients in a primary health care setting: Bereaved relatives' experience, a qualitative group interview study
M. A. Neergaard (2008)
Do available questionnaires measure the communication factors that patients and families consider important at end of life?
E. Grunfeld (2008)
Screening cancer patients' families with the distress thermometer (DT): a validation study
D. Zwahlen (2008)
A review of distress and its management in couples facing end‐of‐life cancer
L. M. McLean (2007)
Family meetings in palliative care: Multidisciplinary clinical practice guidelines
P. Hudson (2008)
Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life
Siew Tzuh Tang (2007)

This paper is referenced by
Experience of meaning in life in bereaved informal caregivers of palliative care patients
M. Brandstätter (2013)
Dealing with Depression: Communicating with Cancer Patients and Grieving Relatives
L. Grassi (2013)
Can early palliative care with anticancer treatment improve overall survival and patient-related outcomes in advanced lung cancer patients? A review of the literature
M. Ambroggi (2018)
Social work perspectives on family communication and family conferences in palliative care
I. C. Fineberg (2010)
Correction to: Can early palliative care with anticancer treatment improve overall survival and patient-related outcomes in advanced lung cancer patients? A review of the literature
M. Ambroggi (2018)
Communication in palliative medicine: a clinical review of family conferences.
R. Powazki (2014)
Shared decision making: whose decision?
P. Corrigan (2009)
Utility and use of palliative care screening tools in routine oncology practice.
A. Abernethy (2010)
Effect of the Carer Support Needs Assessment Tool intervention (CSNAT-I) in the Danish specialised palliative care setting: a stepped-wedge cluster randomised controlled trial
L. Lund (2020)
' s response to reviews Title : Development of quality indicators for the measurement of the organisation of palliative care in Europe : The Europall project
I. Colombet (2011)
Iranian nurses' perceptions of the conditions of the families with terminally ill patients: Family in limbo
Reza Norouzadeh (2019)
Continuous Deep Sedation Until Death: Palliation or Physician-Assisted Death?
M. Rady (2010)
Crisis in Caregiving: When Home-Based End-Of-Life Care is No Longer Possible
D. Waldrop (2011)
Quality indicators for the organisation of palliative care in Europe
K. Woitha (2014)
Communication vignettes: 'You Must Get Her Out of Bed, Nurse!'
Harrison Scott (2011)
Preloss grief in family caregivers during end‐of‐life cancer care: A nationwide population‐based cohort study
Mette Kjærgaard Nielsen (2017)
Support processes for stroke survivors and their spouses : a realistic evaluation
P. Jones (2019)
Development of a set of process and structure indicators for palliative care: the Europall project
K. Woitha (2012)
Feedback on the draft Clinical Guidance for Responding to Suffering in Adults with Cancer
Final decisions: how hospice enrollment prompts meaningful choices about life closure.
D. Waldrop (2014)
Conceptualising psychological distress in families in palliative care: Findings from a systematic review
C. Carolan (2015)
Does a pediatric palliative care network respond to the needs of families? Efficacy of a pediatric palliative network
A. Ferrante (2013)
Integrating supportive and palliative care in the trajectory of cancer: establishing goals and models of care.
E. Bruera (2010)
Swampy territory: The role of the palliative care social worker in safeguarding children of adults who are receiving specialist palliative care
C. Comben (2010)
Death and Dying: A Nursing Focus on the Care of the Patient
Kerry Brodbeck (2019)
Holistic view of patients with melanoma of the skin: how can health systems create value and achieve better clinical outcomes?
Patrícia Redondo (2019)
The shift to early palliative care: a typology of illness journeys and the role of nursing.
Elaine Wittenberg-Lyles (2011)
ICU versus Non-ICU Hospital Death: Family Member Complicated Grief, Posttraumatic Stress, and Depressive Symptoms.
Danielle R. Probst (2016)
Chapter 73 – What Can Be Done to Improve Outcomes for Caregivers of Patients With Serious Illness?
D. Waldrop (2013)
Patient safety in palliative care: A mixed-methods study of reports to a national database of serious incidents
I. Yardley (2018)
Biopsychosocial and Spiritual Implications of Patients With COVID-19 Dying in Isolation
T. Galbadage (2020)
Biopsychosocial and Spiritual Implications of Patients With COVID-19 Dying in Isolation
T. Galbadage (2020)
See more
Semantic Scholar Logo Some data provided by SemanticScholar