Online citations, reference lists, and bibliographies.
← Back to Search

The Assessment And Management Of Family Distress During Palliative Care

T. Zaider, D. Kissane
Published 2009 · Medicine

Save to my Library
Download PDF
Analyze on Scholarcy
Share
Purpose of reviewIn the advanced stages of illness, families manage multiple caregiving demands while facing the emotional task of preparing for the loss of their loved one. Palliative care settings are well suited to identifying families at risk for elevated distress, and providing support as they navigate this process. This review summarizes current research in the assessment and management of family distress at the end of life. Recent findingsThe recent literature on families of terminally ill cancer patients has provided a more precise description of the relational and cultural factors that contribute to family distress. Studies eliciting the perspectives of family members on what is needed at the end of life affirm the importance of supportive communication and continuity of psychosocial care into bereavement. Other developments include efforts to establish guidelines for conducting family meetings in the palliative care setting, and to train palliative care practitioners in family-centered assessment techniques. Finally, there is a limited but growing evidence base for the utility of delivering family-focused psychosocial interventions during palliative care. SummaryThe knowledge gained from current research on what is most salient to family members during palliative care is critical for ensuring effective delivery of supportive services and collaborative engagement in those services.
This paper references
10.1176/APPI.AJP.163.7.1208
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement.
D. Kissane (2006)
10.1093/JPEPSY/JSM053
The Psychosocial Assessment Tool (PAT2.0): psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer.
Ahna L. H. Pai (2008)
10.1017/S1478951509000224
Conducting family meetings in palliative care: themes, techniques, and preliminary evaluation of a communication skills module.
J. Gueguen (2009)
10.1093/ANNONC/MDI210
Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase.
E. Grov (2005)
10.1089/jpm.2007.0165
What questions do family caregivers want to discuss with health care providers in order to prepare for the death of a loved one? An ethnographic study of caregivers of patients at end of life.
R. Hebert (2008)
10.1016/J.JPAINSYMMAN.2007.02.039
Family members' perceived needs for bereavement follow-up.
A. Milberg (2008)
10.1016/S0885-3924(99)00014-7
Family caregiver quality of life: differences between curative and palliative cancer treatment settings.
M. Weitzner (1999)
Family focused grief therapy : a model of family-centred care during palliative care and bereavement
D. Kissane (2002)
10.1002/PON.1199
Psychiatric morbidity and quality of life in wives of men with long‐term head and neck cancer
N. Drabe (2008)
10.1002/PON.2960030109
Psychological morbidity in the families of patients with cancer
D. Kissane (1994)
10.1177/0269216307088187
Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care
P. Hudson (2008)
10.1016/S0738-3991(01)00194-X
Essential information and support needs of family caregivers.
S. Wackerbarth (2002)
Family Environment Scale Manual
R H Moos (1981)
NIH State - ofthe - Science Conference Statement on improving end - of - life care
JS Rolland (2004)
10.1016/S0959-8049(03)00309-5
The psychological impact of cancer on patients' partners and other key relatives: a review.
C. Pitceathly (2003)
10.1002/cncr.21489
Cancer and the family: An integrative model
J. Rolland (2005)
10.1002/PON.1241
Cancer families with children: factors associated with family functioning—a comparative study in Finland
F. Schmitt (2008)
Resilient families
T Zaider
10.1002/PON.746
Couples therapy at end of life
D. Mohr (2003)
10.1097/01.AACN.0000298635.45653.C8
Family support at end of life.
K. Kirchhoff (2007)
10.1001/jama.300.14.1665
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment.
A. Wright (2008)
10.1177/0269216307085339
Health-related quality of life in significant others of patients dying from lung cancer
C. Persson (2008)
10.1002/PON.773
The psychological impact of a cancer diagnosis on families: The influence of family functioning and patients' illness characteristics on depression and anxiety
B. Edwards (2004)
10.1188/08.ONF.365-371
Understanding the meaning of social well-being at the end of life.
M. Prince-Paul (2008)
10.1089/JPM.2006.9.1164
Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research.
R. Hebert (2006)
10.1186/1472-684X-7-1
Palliative care for cancer patients in a primary health care setting: Bereaved relatives' experience, a qualitative group interview study
M. A. Neergaard (2008)
10.1200/JCO.2007.15.8006
Do available questionnaires measure the communication factors that patients and families consider important at end of life?
E. Grunfeld (2008)
10.1002/pon.1320
Screening cancer patients' families with the distress thermometer (DT): a validation study
D. Zwahlen (2008)
10.1002/PON.1196
A review of distress and its management in couples facing end‐of‐life cancer
L. M. McLean (2007)
10.1186/1472-684X-7-12
Family meetings in palliative care: Multidisciplinary clinical practice guidelines
P. Hudson (2008)
10.1177/0269216307077334
Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life
Siew Tzuh Tang (2007)



This paper is referenced by
10.1007/s00520-013-2099-6
Experience of meaning in life in bereaved informal caregivers of palliative care patients
M. Brandstätter (2013)
10.1007/978-1-4614-3369-9_6
Dealing with Depression: Communicating with Cancer Patients and Grieving Relatives
L. Grassi (2013)
10.1007/s00520-018-4184-3
Can early palliative care with anticancer treatment improve overall survival and patient-related outcomes in advanced lung cancer patients? A review of the literature
M. Ambroggi (2018)
10.1179/096992610X12624290277105
Social work perspectives on family communication and family conferences in palliative care
I. C. Fineberg (2010)
10.1007/s00520-018-4303-1
Correction to: Can early palliative care with anticancer treatment improve overall survival and patient-related outcomes in advanced lung cancer patients? A review of the literature
M. Ambroggi (2018)
10.1089/jpm.2013.0538
Communication in palliative medicine: a clinical review of family conferences.
R. Powazki (2014)
10.1176/appi.ps.60.11.1555
Shared decision making: whose decision?
P. Corrigan (2009)
10.1097/PPO.0b013e3181f45df0
Utility and use of palliative care screening tools in routine oncology practice.
A. Abernethy (2010)
10.1136/bmjspcare-2020-002467
Effect of the Carer Support Needs Assessment Tool intervention (CSNAT-I) in the Danish specialised palliative care setting: a stepped-wedge cluster randomised controlled trial
L. Lund (2020)
' s response to reviews Title : Development of quality indicators for the measurement of the organisation of palliative care in Europe : The Europall project
I. Colombet (2011)
10.4103/nms.nms_73_18
Iranian nurses' perceptions of the conditions of the families with terminally ill patients: Family in limbo
Reza Norouzadeh (2019)
10.1177/1049909109348868
Continuous Deep Sedation Until Death: Palliation or Physician-Assisted Death?
M. Rady (2010)
10.1177/082585971102700207
Crisis in Caregiving: When Home-Based End-Of-Life Care is No Longer Possible
D. Waldrop (2011)
Quality indicators for the organisation of palliative care in Europe
K. Woitha (2014)
10.1136/EOLJNL-01-03.3
Communication vignettes: 'You Must Get Her Out of Bed, Nurse!'
Harrison Scott (2011)
10.1002/pon.4416
Preloss grief in family caregivers during end‐of‐life cancer care: A nationwide population‐based cohort study
Mette Kjærgaard Nielsen (2017)
Support processes for stroke survivors and their spouses : a realistic evaluation
P. Jones (2019)
10.1186/1472-6963-12-381
Development of a set of process and structure indicators for palliative care: the Europall project
K. Woitha (2012)
Feedback on the draft Clinical Guidance for Responding to Suffering in Adults with Cancer
(2014)
10.1017/S1478951512001113
Final decisions: how hospice enrollment prompts meaningful choices about life closure.
D. Waldrop (2014)
10.1177/0269216315575680
Conceptualising psychological distress in families in palliative care: Findings from a systematic review
C. Carolan (2015)
Does a pediatric palliative care network respond to the needs of families? Efficacy of a pediatric palliative network
A. Ferrante (2013)
10.1200/JCO.2010.29.5618
Integrating supportive and palliative care in the trajectory of cancer: establishing goals and models of care.
E. Bruera (2010)
Swampy territory: The role of the palliative care social worker in safeguarding children of adults who are receiving specialist palliative care
C. Comben (2010)
10.13189/UJPH.2019.070307
Death and Dying: A Nursing Focus on the Care of the Patient
Kerry Brodbeck (2019)
10.3332/ecancer.2019.959
Holistic view of patients with melanoma of the skin: how can health systems create value and achieve better clinical outcomes?
Patrícia Redondo (2019)
10.1188/11.CJON.304-310
The shift to early palliative care: a typology of illness journeys and the role of nursing.
Elaine Wittenberg-Lyles (2011)
10.1089/jpm.2015.0120
ICU versus Non-ICU Hospital Death: Family Member Complicated Grief, Posttraumatic Stress, and Depressive Symptoms.
Danielle R. Probst (2016)
10.1016/B978-1-4377-3796-7.00073-2
Chapter 73 – What Can Be Done to Improve Outcomes for Caregivers of Patients With Serious Illness?
D. Waldrop (2013)
10.1177/0269216318776846
Patient safety in palliative care: A mixed-methods study of reports to a national database of serious incidents
I. Yardley (2018)
10.31234/osf.io/7um3x
Biopsychosocial and Spiritual Implications of Patients With COVID-19 Dying in Isolation
T. Galbadage (2020)
10.3389/fpsyg.2020.588623
Biopsychosocial and Spiritual Implications of Patients With COVID-19 Dying in Isolation
T. Galbadage (2020)
See more
Semantic Scholar Logo Some data provided by SemanticScholar