← Back to Search
'Hands Of Time': The Experience Of Establishing A Support Group For People Affected By Mesothelioma.
S. Moore, C. Teehan, A. Cornwall, K. Ball, J. Thomas
Published 2008 · Medicine
Download PDFAnalyze on Scholarcy
Expertise and management of mesothelioma are known to vary throughout the UK. The support needs of people with mesothelioma and their family members are poorly understood and poorly met. Support group participation can contribute to the supportive care of people with cancer and their family members by improving adaptation and reinforcing effective coping strategies. This paper describes the initial experience of establishing a support group for people affected by mesothelioma. The structure and process of developing and running the group are described and the challenges involved are discussed. The findings of a small evaluation of the group are presented.
This paper references
Self-Help Groups in Western Society: History and Prospects
A. H. Katz (1976)
Support needs in the last year of life: patient and carer dilemmas
G. Grande (1997)
The psychological impact of cancer.
P. Maguire (1985)
Living with cancer : understanding the experiences of close relatives of people with cancer
H. Plant (2000)
Experience, functions and benefits of a cancer support group.
Andrea Docherty (2004)
The European mesothelioma epidemic
J. Peto (1999)
Support group for cancer patients. Does it improve their physical and psychological wellbeing? A pilot study
C. Lindemalm (2005)
Identifying the concerns of informal carers in palliative care
S. Payne (1999)
# 2008 The Authors Journal compilation # 2008 Blackwell Publishing Ltd/International Behavioural and Neural Genetics Society
Recognizing cancer as a family disease: worries and support reported by patients and spouses.
S. Davis-Ali (1993)
Support group programme for relatives of terminally ill cancer patients
Åsa Witkowski (2003)
Malignant pleural mesothelioma.
H. Beauchamp (1992)
The Mesothelioma Journey
R. Hawley (2004)
Effects of psychosocial interventions with adult cancer patients: a meta-analysis of randomized experiments.
T. J. Meyer (1995)
Emotional support for cancer patients: what do patients really want?
M. Slevin (1996)
Negative experiences in support groups.
M. Galinsky (1994)
Giving and Receiving Help: Interpersonal Transactions in Mutual-Help Meetings and Psychosocial Adjustment of Members
L. Roberts (1999)
Annual deaths from mesothelioma in Britain to reach 2000 by 2010
C. White (2003)
Lung cancer: patients', families' and professionals' perceptions of health care need. A national needs assessment study in progress
M. Krishnasamy (1997)
The “Helper” Therapy Principle
F. Riessman (1965)
Radical surgery for mesothelioma
T. Treasure (2004)
An exploration of helping processes in an online self-help group focusing on issues of disability.
J. Finn (1999)
Needs of family caregivers of persons with cancer: a review.
A. Laizner (1993)
Patients and carer experiences of care provision after a diagnosis of lung cancer in Scotland
M. Krishnasamy (2006)
Nursing and cancer support groups.
A. Zabalegui (2005)
Participants’ Experiences of a Support Group Intervention for Family Members during Ongoing Palliative Home Care
A. Milberg (2005)
What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
R. Harding (2003)
This paper is referenced by
Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers
A. Granieri (2013)
Living with mesothelioma. A literature review.
S. Moore (2010)
Quality of life of survivors of malignant pleural mesothelioma in Japan: a cross sectional study
Yasuko Nagamatsu (2018)
British Thoracic Society Guideline for the investigation and management of malignant pleural mesothelioma
I. Woolhouse (2018)
Pleural mesothelioma: management updates and nursing initiatives to improve patient care
Rebecca H Lehto (2014)
“It sort of hit me like a baseball bat between the eyes”: a qualitative study of the psychosocial experiences of mesothelioma patients and carers
S. Girgis (2018)
A comparative study of uncertainty and coping strategies of patients with multiple sclerosis for members and nonmembers in peer groups
Shahla Biglar Chopoghlou (2019)
Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review
V. Delisle (2016)
The psychological distress and care needs of mesothelioma patients and asbestos‐exposed subjects: A systematic review of published studies
M. Bonafede (2018)
Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study
Stephanie T. Gumuchian (2018)
Guidelines for the diagnosis and treatment of malignant pleural mesothelioma.
N. van Zandwijk (2013)