Online citations, reference lists, and bibliographies.

Journey Of Ethics - Conducting Collaborative Research With People With Dementia.

Diana Schack Thoft, Alison Ward, Jane Youell
Published 2020 · Medicine, Psychology
Cite This
Download PDF
Analyze on Scholarcy
Share
This paper explores some of the ethical considerations of working collaboratively with people with dementia within research based upon the experiences, challenges and learning from three doctoral r...
This paper references
10.1111/j.1365-2702.2005.01162.x
Beyond tokenistic involvement of older people in research - a framework for future development and understanding.
Belinda Jane Dewar (2005)
Information sheets & consent forms guidance for researchers & reviewers
(2011)
10.1177/1471301204042332
Make it Easy on Yourself!
J. McKillop (2004)
10.1017/S153759270631047X
The Ethics of Care: Personal, Political, and Global
Joan Elizabeth Cocks (2006)
An Overview of the Challenges faced during Cross-Cultural Research
Moon Moon Halder (2017)
10.1111/j.1547-5069.2001.00093.x
Ethics in qualitative research.
Angélica Orb (2001)
10.3233/JAD-161285
When Patient Engagement and Research Ethics Collide: Lessons from a Dementia Forum.
Julie M. Robillard (2017)
10.1111/ajag.12767
Will I still be me: Finding a continuing sense of self in the lived experience of dementia C. Bryden, Jessica Kingsley, London, 2018. ISBN 978-1-78592-555-9 (soft cover). $18.95.
Sandra J. Davis (2020)
I I T of younger people with dementia. An action research study
F E Pipon-Young (2011)
Using photovoice with people with early-A A methodology
E C Wiersma (2011)
Visual Ethics: Ethical Issues in Visual Research
Rose Wiles (2008)
10.7748/nm.22.10.21.s26
Mental Capacity Act.
Rosemary Williams (2016)
10.1111/J.1467-8551.2012.00841.X
Participatory Organizational Research: Examining Voice in the Co‐Production of Knowledge
Diane Burns (2014)
Changing priorities for a new dementia strategy
J Manthorpe (2017)
Ethical issues in dementia care research
Hannah Bartlett (2002)
10.3389/fpsyg.2017.00625
Reorganization of the Connectivity between Elementary Functions – A Model Relating Conscious States to Neural Connections
Jesper Mogensen (2017)
10.1177/1744987109106811
Patient and public involvement in health services and health research: A brief overview of evidence, policy and activity
Sophie H Staniszewska (2009)
10.1177/1049732308329306
Power Relations in Qualitative Research
Orit Karnieli-Miller (2009)
Barriers to qualitative dementia research: The elephant in the room
London (2014)
N G K ' I as advisers and participants
B J quot
Nothing about us, without us. Dementia Alliance International
K. Swaffer (2015)
The role of personal storytelling in practice. Insights 23. London, UK: Institute for Research and Innovation in Social Services
London Sage (2013)
10.1016/j.jalz.2014.05.413
AWARENESS OF FUNCTIONAL ABILITY IN PEOPLE WITH DEMENTIA: DIAGNOSTIC ACCURACY AND CLINICAL IMPLICATIONS
Anthony Martyr (2014)
Understanding photography and storytelling with people with early-stage dementia to understand their lived experience and enable them to tell their stories. Northampton, UK: University of Northampton
(2019)
PWヴゲラミゲ ┘キデエ SWマWミデキ; ;ゲ けノキ;Hキノキデ┞ マ;ェミWデゲげぎ WデエキI;ノ キマヮノキI;デキラミゲく The Journal of Clinical Ethics, 9, 66-70
London (1998)
Dementia, rights and the social model of disability
T Williamson (2015)
10.1177/1077800406294947
Telling Secrets, Revealing Lives
Carolyn Ellis (2007)
10.1111/j.1748-3743.2007.00096.x
Engaging older people with dementia in research: myth or possibility.
Fiona Cowdell (2008)
10.3928/00989134-20090301-10
Cognitive training for early-stage Alzheimer's disease and dementia.
Fang Yu (2009)
10.1111/J.1748-3743.2010.00219.X
The use of life story work with people with dementia to enhance person-centred care
Rmn Jane McKeown Pg Dip (2010)
Involving people with early-stage dementia in qualitative research about their lifeworld perspectives : development of a participatory research model
Diana Schack Thoft (2017)
10.1177/1049732314554099
Barriers to Qualitative Dementia Research
John Tully Carmody (2015)
10.5040/9781849666558
What Are Qualitative Research Ethics
Damond Jackson (2013)
10.4135/9781412961288.n105
Declaration of Helsinki.
J. Rodman Williams (1968)
10.1080/0269905031000107133
Theoretical basis for brain plasticity after a TBI
Paul Bach-y-Rita (2003)
10.1108/WWOP-11-2016-0033
Research involving people with dementia: a literature review
Emma Rivett (2017)
さIげマ ;ノ┘;┞ゲ ┘Wノノ ┘エWミ ┘W ;ヴW デラェWデエWヴざぎ OHゲWヴ┗;デキラミ ラa institutional activities with people with dementia and its implications for a co-design research project. Design4Health
R. M. Branco (2015)
10.1177/1471301203002001994
Opinions Regarding Who Should Consent to Research on Behalf of an Older Adult Suffering from Dementia
Gina Bravo (2003)
P A -based inquiry T " A poetry project
A Swinnen (2018)
The role of personal storytelling in practice. Insights 23
M Drumm (2013)
Dementia - supporting people with dementia and their carers in health & social care
Housing Lin (2006)
10.3109/09638237.2011.651658
Co-research with older people with dementia: Experience and reflections
Denise Tanner (2012)
The ANGELA Project: improving diagnosis and post-diagnostic support for younger people with dementia and their families/supporters
Jacqueline Parkes (2018)
10.1002/gps.4664
Awareness of functional ability in people with early‐stage dementia
Anthony Martyr (2018)
ゲデキノノ ゲヮW;ニぎ TエW W┝ヮWヴキWミIWゲ of younger people with dementia
F. E. Pipon-Young (2011)
Listen, talk, connect
U K Care (2014)
10.1177/1077800403262360
Ethics, Reflexivity, and “Ethically Important Moments” in Research
Marilys Guillemin (2004)
Make it easy on yourself! Dementia
J Mckillop (2004)
Hjernens funktionelle organisation og reorganisering
J Mogensen (2013)
10.1136/bmj.318.7187.880a
Dementia Reconsidered: the Person Comes First
Leon Flicker (1999)
10.1111/phn.12075
Public health model identifies recruitment barriers among older adults with delirium and dementia.
Margaret J. Bull (2014)
10.1177/0969733012455564
The importance of moral sensitivity when including persons with dementia in qualitative research
Anne Kari Tolo Heggestad (2013)
10.1080/17496535.2010.484264
Crossing the Divide between Theory and Practice: Research and an Ethic of Care
Lizzie Ward (2010)
Persons with dementia as "liability magnets": ethical implications.
Marshall B. Kapp (1998)
Emancipatory practice development through life-story work: Changing are in a memory clinic in North Wales. Practice Development in Health Care
J Keady (2005)
EデエキIゲが ヴWaノW┝キ┗キデ┞が ;ミS さWデエキI;ノノ┞ キマヮラヴデ;ミデ マラマWミデゲざ キミ ヴWゲW;ヴIエく
M. Guillemin (2004)
10.1177/0969733007080206
Ethical and Methodological Issues in Interviewing Persons With Dementia
Ingrid Hellström (2007)
10.1177/0969733007071355
Consent and Assent to Participate in Research from People with Dementia
Susan J. Slaughter (2007)
さI ノラ┗Wゲ エWヴ ;ミS ゲエW ノラ┗Wゲ マWざぎ A ケ┌;ノキデ;デキ┗W ゲデ┌S┞ キミデラ デエW ヴWノ;デキラミ;ノ W┝ヮWヴキWミIW ラa ノキ┗キミェ with dementia
J. Youell (2015)
Issues of equity in the selection of subjects for experimental research in senile A
H R Moody (1985)
Perspectives on ageing with dementia
D. Weaks (2012)
Visual research ethics at the crossroads
Rose Wiles (2011)
10.1093/CDJ/BSN010
Unpacking 'Participation': models, meanings and practices
Andrea Cornwall (2008)
Including the perspectives of older people in institutional care during the consent process
G Hubbard (2003)
10.1136/jme.28.5.332-a
Principles of Biomedical Ethics, 5th edn.
Søren Holm (2002)
Ideas to help people with dementia to continue to enjoy reading
Luke Walsh (2016)
10.1177/1468794114567493
Visualising dementia activism: using the arts to communicate research findings
Ruth Bartlett (2015)
10.1108/14717794200000005
Accessing and interviewing the oldest old in care homes
Malcolm J. Fisk (2000)
10.1177/1471301211398990
Using Photovoice with people with early-stage Alzheimer’s disease: A discussion of methodology
Elaine Wiersma (2011)
Should people with Alzheimer´s disease take part in research
E Robinson (2002)
Economic and Social Research Centre National Centre for Research Methods
U K Manchester
Skoletilbud til borgere med demens i tidligt stadie
(2019)
Dementia Supporting people with dementia and their carers in health and social care. NICE clinical guideline 42
(2006)
IミIノ┌Sキミェ デエW ヮWヴゲラミ ┘キデエ SWマWミデキ; キミ SWゲキェミキミェ ;ミS SWノキ┗Wヴキミェ I;ヴWく けI ミWWS デラ
E. Barnett (2000)
Exploring Innovative Ways of Seeking the Views of Older People in Health and Social Care Research
Heather A. Wilkinson (2003)
Doing cross-cultural research. Ethical and methodological perspectives
Ajay Bailey (2008)
10.1111/j.1748-3743.2010.00219.x
The use of life story work with people with dementia to enhance person-centred care.
Jane McKeown (2010)
10.1201/b20741-24
Ethical issues in dementia
Peter John Whitehouse (2000)
10.1177/1471301211421087
I'm not all gone, I can still speak: The experiences of younger people with dementia. An action research study
Fiona E. Pipon-Young (2012)
10.1093/geront/gnw196
“Play” and People Living With Dementia: A Humanities-Based Inquiry of TimeSlips and the Alzheimer’s Poetry Project
Aagje Swinnen (2018)
10.1002/pdh.18
Emancipatory practice development through life‐story work: changing care in a memory clinic in North Wales
John Keady (2005)
Undervisning til borgere med demens i et tidligt stadie
10.1177/1471301207075625
Participatory research
Jan Dewing (2007)
10.1080/01634372.2014.900161
The Forgotten: Dementia and the Aging LGBT Community
Justine McGovern (2014)
10.4135/9781473913912.N9
Knowing Responsibly: Ethics, Feminist Epistemologies and Methodologies
Andrea Doucet (2012)
10.1177/0261018312439362
Avoiding the involvement overdose: Drugs, race, ethnicity and participatory research practice
Alastair Neil Roy (2012)
10.1177/147130120200100204
From Ritual to Relationship
Jan Dewing (2002)
Before I forget. How I survived being diagnosed with young onset dementia at 46
C Bryden (2015)
Understanding photography and storytelling with people with early-stage dementia to understand their lived experience and enable them to tell their stories
A Ward (2019)
10.1007/978-94-015-8986-4_9
The Ethical Demand
Olli Lagerspetz (1998)
10.1007/978-1-4020-8567-3_1
Doing Research in a Cross-Cultural Context: Methodological and Ethical Challenges
Pranee Liamputtong (2008)
The perspectives of people with dementia: Research methods and motivations
Claudine McCreadie (2004)
10.1111/j.1365-2850.2010.01649.x
Hearing (Our) Voices: Participatory Research in Mental Health
Tim Schafer Phd Pg Dip Rmn (2011)
10.1177/1471301211421063
Moving beyond patient and client approaches: Mobilizing ‘authentic partnerships’ in dementia care, support and services
Sherry L. Dupuis (2012)
10.1016/j.bandc.2007.08.003
Selective attention in early Dementia of Alzheimer Type
Diego Fernandez-Duque (2008)
10.1007/978-1-4612-5174-3_14
Issues of Equity in the Selection of Subjects for Experimental Research on Senile Dementia of the Alzheimer’s Type
Harry R. Moody (1985)
2015) I A with dementia
J Youell
Aarhus Universitet: Institut for Uddannelse og Paedagogik
10.1177/1471301218820208
The Balanced Participation Model: Sharing opportunities for giving people with early-stage dementia a voice in research.
Diana Schack Thoft (2018)



Semantic Scholar Logo Some data provided by SemanticScholar