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The Social Consequences Of Living With And Dealing With Incontinence--a Carers Perspective.

K. Brittain, C. Shaw
Published 2007 · Medicine

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Incontinence is a discrediting and stigmatising condition for those who experience it, as it signifies a person who is lacking in self-control. For their carers, the very nature of undertaking 'dirty work' signifies a low status and low paid job. Those health care professionals higher in status and financial reward put distance between themselves and bodywork, especially bodywork that deals with bodily decay. However, little is known or has been highlighted about the social consequences that living with and dealing with incontinence can have on informal carers. In this paper we examine the notion of dirty work and 'unbounded' bodies in the role of informal carers. Through qualitative interviews with carers of stroke survivors the negative social consequences of dealing with incontinence for both the survivor and the carer are explored. We also examine the strategies employed by carers and stroke survivors in order to manage the symptom in an attempt to prove the adult status of the survivor and to protect both the identity of the survivor and the carer. The embarrassment of leakage and the moral danger of odour can lead some carers and survivors to make decisions that can isolate both within the confines of their home. In this sense the very meaning of home is transformed into an isolated and marginalised space.
This paper references
10.2307/2092865
Passing on: The Social Organization of Dying
David Sudnow (1967)
10.1111/J.1751-9020.2007.00069.X
The Sociology of Death
T. Walter (2008)
10.4135/9780857020093
The quality of qualitative research
C. Seale (1999)
10.1300/J013v37n03_03
The Constraints of a Normal Life: The Management of Urinary Incontinence by Middle Aged Women
S. Peake (2003)
10.1016/J.HEALTHPLACE.2004.06.001
The home as a site for long-term care: meanings and management of bodies and spaces.
I. Dyck (2005)
10.2307/2798681
Purity and Danger: An Analysis of Concepts of Pollution and Taboo.
E. Ardener (1967)
10.1046/j.1532-5415.2001.49179.x
Self‐Reported Social and Emotional Impact of Urinary Incontinence
N. Fultz (2001)
10.1017/S0144686X99007801
Carework as a form of bodywork
J. Twigg (2000)
10.1111/j.1467-954X.1992.tb03385.x
Social Death in Britain
M. Mulkay (1992)
The Sociological Eye
E. Hughes (1971)
Listening to carers talking about the subjects of continence and toileting.
L. Forbat (2004)
10.1089/JWH.1998.7.1263
Urge incontinence: the patient's perspective.
J. Brown (1998)
10.1016/J.SOCSCIMED.2004.11.019
The impact of own and spouse's urinary incontinence on depressive symptoms.
N. Fultz (2005)
10.1016/J.SOCSCIMED.2004.11.051
Boundary breaches: the body, sex and sexuality after stoma surgery.
L. Manderson (2005)
10.1046/J.1365-2648.2003.02664.X
The impact of incontinence on older spousal caregivers.
C. Cassells (2003)
10.1111/j.1532-5415.1992.tb01986.x
A Comparison of Caregivers for Elderly Stroke and Dementia Victims
B. Draper (1992)
10.1111/J.1475-4762.2000.TB00114.X
‘Bearing the burden’: towards a restructured geography of caring
C. Milligan (2000)
10.1177/019251302236595
Toward a Sociology of (Gendered) Disgust
L. Isaksen (2002)
10.3109/02813439209014063
Urinary incontinence in women and the effects on their lives.
T. Lagro-Janssen (1992)
10.2307/3341866
The Body Social: Symbolism, Self and Society
A. Frank (1995)
10.1093/GERONT/27.2.185
The management of urinary incontinence by community-living elderly.
L. S. Mitteness (1987)
10.1111/1467-9566.00094
Contemporary Hospice Care: the Sequestration of the Unbounded Body and ‘Dirty Dying’
J. Lawton (1998)
Improving long-term outcome after stroke--the views of patients and carers.
G. Greveson (1991)
10.1023/A:1026414822573
Management in general practice significantly reduced psychosocial consequences of female urinary incontinence
A. Seim (2004)
10.1525/MAQ.1999.13.3.267
"Part and parcel of being a woman": female urinary incontinence and constructions of control.
S. Peake (1999)
10.4324/9780203130278
The dying process : patients' experiences of palliative care
J. Lawton (2002)
10.1002/J.2048-7940.2002.TB01976.X
Caregivers' and Care Recipients' Perceptions of Dealing with Urinary Incontinence
Martha S Gallagher (2002)
10.1136/qshc.3.2.107
Qualitative methods for assessing health care.
R. Fitzpatrick (1994)
10.1111/J.1468-0432.2005.00268.X
Women's Work, Dirty Work: The gynaecology nurse as 'Other'
S. Bolton (2005)
10.1093/AGEING/21.6.421
Caring for elderly dependents: effects on the carers' quality of life.
D. Jones (1992)
10.1525/MAQ.2001.15.1.84
The pollution of incontinence and the dirty work of caregiving in a U.S. nursing home.
L. Jervis (2001)
10.1111/J.1475-4762.2000.TB00129.X
The ageing body and the homespace
G. Mowl (2000)
The anatomy of disgust
W. Miller (1997)
10.1016/0890-4065(94)90007-8
Transgressions and sickness in old age
Elizabeth J. Herskovits (1994)
10.1037//0882-7974.3.2.115
Urinary incontinence and psychological distress among older adults.
Herzog Ar (1988)
10.1023/A:1024938014606
The Quality of Life of Older Adults with Urinary Incontinence: Determining Generic and Condition-Specific Predictors
E. Dugan (2004)
10.1136/bmj.293.6544.418
Effects of living with and looking after survivors of a stroke.
D. Wade (1986)
10.1111/J.1471-6712.1993.TB00162.X
Female urinary incontinence--psychosocial impact, self care, and consultations.
H. Sandvik (1993)
10.1017/S0144686X99007539
Local biology: bodies of difference in ageing studies
P. Kontos (1999)
10.4324/9780203361832
Purity and Danger: An Analysis of Concepts of Pollution and Taboo
M. Douglas (2002)
10.1046/J.1365-2648.1999.01126.X
Incontinence and sexuality: findings from a qualitative perspective.
B. Roe (1999)
10.1093/AGEING/22.2.82
The influence of urinary incontinence on the quality of life of elderly women.
A. Grimby (1993)
10.2307/798843
The Constant Comparative Method of Qualitative Analysis
B. Glaser (1965)
10.2307/582937
Awareness of Dying
B. Glaser (1971)
10.1300/J074V04N03_04
The Social Value of "Physiological Autonomy":
Susan A. Eisenhandler (1993)
10.1111/j.1532-5415.1998.tb03802.x
The Association of Urinary Incontinence with Poor Self‐Rated Health
T. Johnson (1998)
Living with Chronic Illness
Cheri Register (1987)
10.3109/03790798209166812
The effects of urinary incontinence in women.
C. Norton (1982)
10.1525/MAQ.1995.9.2.02A00050
Stigmatizing a "normal" condition: urinary incontinence in late life.
L. S. Mitteness (1995)
With this body : caring and disability in marriage
G. Parker (1993)
10.1080/1464936032000137902
Location or dis-location? Towards a conceptualization of people and place in the care-giving experience
C. Milligan (2003)
10.1111/J.1467-9566.2005.00438.X
The personal significance of home: habitus and the experience of receiving long-term home care.
J. Angus (2005)
10.1016/S1361-9004(97)80067-2
The body in nursing
B. Price (1997)
10.2307/1318574
Researching Social Life
G. Gilbert (1994)



This paper is referenced by
10.1111/scs.12471
(Can) Not talk about it – Urinary incontinence from the point of view of stroke survivors: a qualitative study
M. Kohler (2018)
10.17696/2318-3691.23.2.2016.296
EFICÁCIA DA DINÂMICA DE GRUPO EM EDUCAÇÃO EM SAÚDE EM MULHERES COM INCONTINÊNCIA URINÁRIA
Karla Thayse Kaestner (2016)
10.7748/NS2012.05.26.36.39.C9087
Patient experiences of bladder problems following stroke.
M. Pilcher (2012)
10.1159/000446955
Approaches to Cope with Stress and Depression in Individuals with Urinary Incontinence
Dilek Bilgic (2016)
10.1016/j.healthplace.2011.04.011
'Only old ladies would do that': age stigma and older people's strategies for dealing with winter cold.
Rosie Day (2011)
10.4081/UIJ.2013.E3
Urinary incontinence: quality of life and psychological aspects
Vito Leanza (2013)
10.1177/2055668317738943
Assessing the stigma content of urinary incontinence intervention outcome measures
Kenneth E Southall (2017)
10.1002/14651858.CD010589
Toileting assistance programmes for the management of urinary incontinence in adults
J. Ostaszkiewicz (2013)
Frail homebound elderly: basic nursing challenges of home care : a comparative study across 11 sites in Europe
L. Sørbye (2009)
10.1016/j.socscimed.2014.06.038
The caregiving bind: concealing the demands of informal care can undermine the caregiving identity.
H. Moore (2014)
10.3310/PGFAR03010
Identifying Continence OptioNs after Stroke (ICONS):an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care
Lois H. Thomas (2015)
10.1007/s11136-015-1070-z
Relationships among symptom severity, coping styles, and quality of life in community-dwelling women with urinary incontinence: a multiple mediator model
D. Xu (2015)
Quality of life in women with urinary incontinence
Escola de Psicologia (2015)
10.4415/ANN_19_01_06
Impact of the lack of integrated care for older people with urinary incontinence and their family caregivers: results from a qualitative pilot study in two large areas of the Marche Region.
Alessia Carsughi (2019)
Mapping Out The Consequences of Urinary Incontinence Among Elderly Women Living At Home: Literature Review
Manka-a Doris Niba (2014)
10.1590/S1413-81232013000700013
Between suffering and hope: rehabilitation from urinary incontinence as an intervening component.
Rita de Cássia Altino Delarmelindo (2013)
10.1186/s12894-019-0555-4
A meta-ethnography to understand the experience of living with urinary incontinence: ‘is it just part and parcel of life?’
Francine Toye (2020)
10.1016/j.archger.2015.10.013
Impact of incontinence on the quality of life of caregivers of older persons with incontinence: A qualitative study in four European countries.
S. Santini (2016)
10.1002/nur.20457
Patients' experiences of seeking health care for lower urinary tract symptoms.
L. Welch (2011)
10.36959/942/337
The Role of Physiotherapy in the Rehabilitation of Stroke Patients with Lower Urinary Tract Symptoms
Tibaek Sigrid (2018)
Health selection and health inequalities
M. Ki (2009)
10.1002/nau.23112
Saccharin increases perception of bladder filling in a forced diuresis experiment
E. Bakali (2017)
10.1016/j.socscimed.2009.08.019
A "usual occurrence:" stress incontinence among reproductive aged women in Sri Lanka.
N. Hemachandra (2009)
10.12968/BJNN.2010.6.1.46057
Causes of and rehabilitation of urinary incontinence after stroke: A literature review
Maureen Matthews (2010)
10.1590/1806-9282.61.02.178
Quality of life in women with urinary incontinence.
Cláudia Senra (2015)
Livskvalitet hos anhöriga som vårdar en äldre närstående med inkontinens - En svensk delrapport av ett EU-projekt initierad av SCA och Eurocarers -
Gunnel Andersson (2012)
10.1111/j.1464-410X.2010.09758.x
Prevalence and the associated trigger factors of urinary incontinence among 5000 black women in sub‐Saharan Africa: findings from a community survey
O. Ojengbede (2011)
10.1111/jocn.14346
Stroke survivors’ and carers’ experiences of a systematic voiding programme to treat urinary incontinence after stroke
Josephine M E Gibson (2018)
10.1108/QAOA-06-2017-0020
Meeting the needs of older people living at home with dementia who have problems with continence
V. Drennan (2017)
10.1016/j.jval.2013.08.1895
Elicitation of Health-Related Quality of Life Concepts Associated with Overactive Bladder
N. A. Hawken (2013)
10.1002/14651858.CD004462.pub4
Interventions for treating urinary incontinence after stroke in adults.
L. Thomas (2019)
10.12968/BJCN.2010.15.8.71944
Faecal incontinence in older people: delivering effective, dignified care.
Belinda G. Smith (2010)
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