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The Social Consequences Of Living With And Dealing With Incontinence--a Carers Perspective.
K. Brittain, C. Shaw
Published 2007 · Medicine
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Incontinence is a discrediting and stigmatising condition for those who experience it, as it signifies a person who is lacking in self-control. For their carers, the very nature of undertaking 'dirty work' signifies a low status and low paid job. Those health care professionals higher in status and financial reward put distance between themselves and bodywork, especially bodywork that deals with bodily decay. However, little is known or has been highlighted about the social consequences that living with and dealing with incontinence can have on informal carers. In this paper we examine the notion of dirty work and 'unbounded' bodies in the role of informal carers. Through qualitative interviews with carers of stroke survivors the negative social consequences of dealing with incontinence for both the survivor and the carer are explored. We also examine the strategies employed by carers and stroke survivors in order to manage the symptom in an attempt to prove the adult status of the survivor and to protect both the identity of the survivor and the carer. The embarrassment of leakage and the moral danger of odour can lead some carers and survivors to make decisions that can isolate both within the confines of their home. In this sense the very meaning of home is transformed into an isolated and marginalised space.
This paper references
Passing on: The Social Organization of Dying
David Sudnow (1967)
The Sociology of Death
T. Walter (2008)
The quality of qualitative research
C. Seale (1999)
The Constraints of a Normal Life: The Management of Urinary Incontinence by Middle Aged Women
S. Peake (2003)
The home as a site for long-term care: meanings and management of bodies and spaces.
I. Dyck (2005)
Purity and Danger: An Analysis of Concepts of Pollution and Taboo.
E. Ardener (1967)
Self‐Reported Social and Emotional Impact of Urinary Incontinence
N. Fultz (2001)
Carework as a form of bodywork
J. Twigg (2000)
Social Death in Britain
M. Mulkay (1992)
The Sociological Eye
E. Hughes (1971)
Listening to carers talking about the subjects of continence and toileting.
L. Forbat (2004)
Urge incontinence: the patient's perspective.
J. Brown (1998)
The impact of own and spouse's urinary incontinence on depressive symptoms.
N. Fultz (2005)
Boundary breaches: the body, sex and sexuality after stoma surgery.
L. Manderson (2005)
The impact of incontinence on older spousal caregivers.
C. Cassells (2003)
A Comparison of Caregivers for Elderly Stroke and Dementia Victims
B. Draper (1992)
‘Bearing the burden’: towards a restructured geography of caring
C. Milligan (2000)
Toward a Sociology of (Gendered) Disgust
L. Isaksen (2002)
Urinary incontinence in women and the effects on their lives.
T. Lagro-Janssen (1992)
The Body Social: Symbolism, Self and Society
A. Frank (1995)
The management of urinary incontinence by community-living elderly.
L. S. Mitteness (1987)
Contemporary Hospice Care: the Sequestration of the Unbounded Body and ‘Dirty Dying’
J. Lawton (1998)
Improving long-term outcome after stroke--the views of patients and carers.
G. Greveson (1991)
Management in general practice significantly reduced psychosocial consequences of female urinary incontinence
A. Seim (2004)
"Part and parcel of being a woman": female urinary incontinence and constructions of control.
S. Peake (1999)
The dying process : patients' experiences of palliative care
J. Lawton (2002)
Caregivers' and Care Recipients' Perceptions of Dealing with Urinary Incontinence
Martha S Gallagher (2002)
Qualitative methods for assessing health care.
R. Fitzpatrick (1994)
Women's Work, Dirty Work: The gynaecology nurse as 'Other'
S. Bolton (2005)
Caring for elderly dependents: effects on the carers' quality of life.
D. Jones (1992)
The pollution of incontinence and the dirty work of caregiving in a U.S. nursing home.
L. Jervis (2001)
The ageing body and the homespace
G. Mowl (2000)
The anatomy of disgust
W. Miller (1997)
Transgressions and sickness in old age
Elizabeth J. Herskovits (1994)
Urinary incontinence and psychological distress among older adults.
Herzog Ar (1988)
The Quality of Life of Older Adults with Urinary Incontinence: Determining Generic and Condition-Specific Predictors
E. Dugan (2004)
Effects of living with and looking after survivors of a stroke.
D. Wade (1986)
Female urinary incontinence--psychosocial impact, self care, and consultations.
H. Sandvik (1993)
Local biology: bodies of difference in ageing studies
P. Kontos (1999)
Purity and Danger: An Analysis of Concepts of Pollution and Taboo
M. Douglas (2002)
Incontinence and sexuality: findings from a qualitative perspective.
B. Roe (1999)
The influence of urinary incontinence on the quality of life of elderly women.
A. Grimby (1993)
The Constant Comparative Method of Qualitative Analysis
B. Glaser (1965)
Awareness of Dying
B. Glaser (1971)
The Social Value of "Physiological Autonomy":
Susan A. Eisenhandler (1993)
The Association of Urinary Incontinence with Poor Self‐Rated Health
T. Johnson (1998)
Living with Chronic Illness
Cheri Register (1987)
The effects of urinary incontinence in women.
C. Norton (1982)
Stigmatizing a "normal" condition: urinary incontinence in late life.
L. S. Mitteness (1995)
With this body : caring and disability in marriage
G. Parker (1993)
Location or dis-location? Towards a conceptualization of people and place in the care-giving experience
C. Milligan (2003)
The personal significance of home: habitus and the experience of receiving long-term home care.
J. Angus (2005)
The body in nursing
B. Price (1997)
Researching Social Life
G. Gilbert (1994)
This paper is referenced by
(Can) Not talk about it – Urinary incontinence from the point of view of stroke survivors: a qualitative study
M. Kohler (2018)
EFICÁCIA DA DINÂMICA DE GRUPO EM EDUCAÇÃO EM SAÚDE EM MULHERES COM INCONTINÊNCIA URINÁRIA
Karla Thayse Kaestner (2016)
Patient experiences of bladder problems following stroke.
M. Pilcher (2012)
Approaches to Cope with Stress and Depression in Individuals with Urinary Incontinence
Dilek Bilgic (2016)
'Only old ladies would do that': age stigma and older people's strategies for dealing with winter cold.
Rosie Day (2011)
Urinary incontinence: quality of life and psychological aspects
Vito Leanza (2013)
Assessing the stigma content of urinary incontinence intervention outcome measures
Kenneth E Southall (2017)
Toileting assistance programmes for the management of urinary incontinence in adults
J. Ostaszkiewicz (2013)
Frail homebound elderly: basic nursing challenges of home care : a comparative study across 11 sites in Europe
L. Sørbye (2009)
The caregiving bind: concealing the demands of informal care can undermine the caregiving identity.
H. Moore (2014)
Identifying Continence OptioNs after Stroke (ICONS):an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care
Lois H. Thomas (2015)
Relationships among symptom severity, coping styles, and quality of life in community-dwelling women with urinary incontinence: a multiple mediator model
D. Xu (2015)
Quality of life in women with urinary incontinence
Escola de Psicologia (2015)
Impact of the lack of integrated care for older people with urinary incontinence and their family caregivers: results from a qualitative pilot study in two large areas of the Marche Region.
Alessia Carsughi (2019)
Mapping Out The Consequences of Urinary Incontinence Among Elderly Women Living At Home: Literature Review
Manka-a Doris Niba (2014)
Between suffering and hope: rehabilitation from urinary incontinence as an intervening component.
Rita de Cássia Altino Delarmelindo (2013)
A meta-ethnography to understand the experience of living with urinary incontinence: ‘is it just part and parcel of life?’
Francine Toye (2020)
Impact of incontinence on the quality of life of caregivers of older persons with incontinence: A qualitative study in four European countries.
S. Santini (2016)
Patients' experiences of seeking health care for lower urinary tract symptoms.
L. Welch (2011)
The Role of Physiotherapy in the Rehabilitation of Stroke Patients with Lower Urinary Tract Symptoms
Tibaek Sigrid (2018)
Health selection and health inequalities
M. Ki (2009)
Saccharin increases perception of bladder filling in a forced diuresis experiment
E. Bakali (2017)
A "usual occurrence:" stress incontinence among reproductive aged women in Sri Lanka.
N. Hemachandra (2009)
Causes of and rehabilitation of urinary incontinence after stroke: A literature review
Maureen Matthews (2010)
Quality of life in women with urinary incontinence.
Cláudia Senra (2015)
Livskvalitet hos anhöriga som vårdar en äldre närstående med inkontinens - En svensk delrapport av ett EU-projekt initierad av SCA och Eurocarers -
Gunnel Andersson (2012)
Prevalence and the associated trigger factors of urinary incontinence among 5000 black women in sub‐Saharan Africa: findings from a community survey
O. Ojengbede (2011)
Stroke survivors’ and carers’ experiences of a systematic voiding programme to treat urinary incontinence after stroke
Josephine M E Gibson (2018)
Meeting the needs of older people living at home with dementia who have problems with continence
V. Drennan (2017)
Elicitation of Health-Related Quality of Life Concepts Associated with Overactive Bladder
N. A. Hawken (2013)
Interventions for treating urinary incontinence after stroke in adults.
L. Thomas (2019)
Faecal incontinence in older people: delivering effective, dignified care.
Belinda G. Smith (2010)See more